How to Exercise when you have hEDS?

What is hypermobile Ehlers Danlos Syndrome (hEDS)?

Hypermobile Ehlers-Danlos Syndrome (hEDS) is a genetic connective tissue disorder that causes joint hypermobility, chronic pain, fatigue, and frequent joint subluxations or dislocations. People with hEDS often struggle with stability, coordination, and muscle support — making exercise feel intimidating or even harmful.

Common Issues that come along with hEDS:

How to exercise when you have hEDS?

If you have hEDS, typical workout plans may not be appropriate. Many traditional exercise routines can overstretch your already lax joints or lead to injuries. That’s why working with a hypermobility-informed physical therapist is so important.

Stability over flexibility:

Because joints are already hypermobile, it is important to focus on stability exercises helping strengthen muscles to prevent joint subluxations and injuries.

Use low impact controlled movements:

Move slowly and track symptoms and progress:

Patients with hEDS often experience post-exertional malaise. Start slow, pace and track your body’s response to each addition of exercise.

Why you should work with a hypermobility specialist?

Not all physical therapists or fitness coaches understand hypermobility and EDS. A true hypermobility specialist knows how to:

  • Stabilize hypermobile joints without overloading them
  • Address common comorbidities like POTS and MCAS
  • Treat pelvic floor dysfunction that often coexists with hEDS
  • Educate you on joint protection strategies and proprioception training
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